An Update

A bit of an overly honest update for you this time.

Sorry.

Alongside the following, there have been many blessings in my ministry which if you follow me on social media you will have seen. I will share a few more at a later date. The encouragement I get in ministry is wonderful.

It’s hard to be honest sometimes though, because so many other people are struggling. Other people have it worse than me – a lot worse, so what reason do I have to complain? Therefor a rarely say anything.

I’ve been shielding, but in the last couple of months I had agreed to do two ‘in person’ things. These were events where good safeguards were in place and there were no children.

It’s scary though when some people won’t wear masks – especially when you know how much more disabled you could become as a result of getting the virus….but I’ve found most people generally don’t consider that an issue.

The second was ok, but a little too squished for my comfort! (They did have windows and doors open though)

The new variant has now made me think more carefully – especially when you see advice from the World Health Organisation. It may not be an issue at all, but I’m glad I’ll have booster halfway through December.

But….

I have found through this last year that many people are inherently selfish. For example, their right not to wear a piece of cloth on their face is more important than the continued ‘health’ of disabled people, therefore banishing us back into a personal lockdown.

I have complained very little about this within my own faith communities and chose to be gracious to those who desperately needed the freedom. But in doing so I have sacrificed my own needs – to my detriment.

Alongside ‘freedom day’ in the summer I could see my own health deteriorating. The state of the NHS made it impossible to do anything about it at that point.

Three weeks ago I finally got an appointment with a GP who was great. This was eventually followed by an emergency referral to the hospital and has been followed by the promise of a raft of tests, an MRI and another specialist appointment. They may take many months to come through.

I have two conditions that react badly to any infection, but I’ve never had a problem with vaccines in the past.

The consultant I saw last week felt the issue was my current conditions having what is often known as a ‘flare storm’ that has affected almost every part of my body. But they want to rule out any other causes – hence the battery of tests and a further appointment.

There is always a reason for these major flares.
When I’ve had them before it has been caused by an infection. But some others with the same conditions as me are reporting similar reactions to the vaccines. Not all, but some.

So, if this is a flare storm, have I had the virus and not realised it? (I regularly get flu like symptoms and random temperature spikes when pain levels are high, so this is not an unreasonable thought), or is it a reaction to the vaccines?

We will probably never know.

Work carries on as normal. It’s a beacon of hope in my life at the moment, along with the people I work with (The Additional Needs Alliance core team have been a life saver).

Both Steve and myself miss people. Normal face to face conversations that are not about work. We miss church and the people we would normally connect with.

In chatting to our (online) home group I found the early service, upstairs, would be safe. So I resolved to go and test it out – my first time to church using my wheelchair, and the first since March 2020. And on the weekend I would have gone…..the lift broke! (No one’s fault) and it’s still broken (again – no one’s fault).

My comments about this were rarely shared and they are not complaints. I’m not angry, just frustrated. From all I’ve written in the previous paragraphs, I think frustration is a normal reaction!

One other frustration is not being able to exercise. Because I have a chronic illness I am not entitled to regular physio, so pre-pandemic I would go to the ‘disabled swim sessions’ at our local leisure centre. This meant I could safely do exercises in the water. I’ve been without these since March 2020, and the local leisure centres are refusing to bring them back.

Could you pray they change their mind?

Could you also pray we can get to church at least once before Christmas? (The new variant ‘may’ make that hard with no masks and lots of children around!)

Pray also for my eyesight – the double vision and nystagmus is much worse. I have all the right gadgets to keep going (And still knitting/crocheting – you just go for the higher of the ‘doubled’ stitches 😆), but it’s really annoying!

I’m aware of how full of the negatives this is, but as people who pray for us – you need to know.
Thankyou!

14 Comments

  1. Sheri says:

    It doesn’t sound negative Kay, more honest and provides plenty of fuel for prayer 🙏 xx

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      1. Debbie says:

        Praying for you Kay. Lots of love x

        Like

  2. Ali says:

    Sending love and prayers beautiful SIL. Xxx

    Like

  3. Beth Mellor says:

    Not at all negative. Thanks for sharing how it really is for you. Praying and sending love x

    Like

    1. Thanks Beth xx (PS: There’s a parcel on its way!)

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  4. Thanks for your honesty Kay. Feeling for you and praying, P&C xx

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  5. Hannah Awesome says:

    Praying and as someone who doesn’t know for sure but pretty confident the jabs caused relapses in my LC recovery I feel for you. I have my booster next week and am nervous of what outcomes could be. Thank you for sharing top points so can pray specifically into these x

    Like

    1. Thanks Hannah. Prayers going up for you too xx

      Like

  6. Sue Fearon says:

    Kay,
    You’re an inspiration! People just don’t think …. Unless they know someone personally, or read something honest like this. Thanks fir spelling out particular prayer needs Sue x

    Like

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